It's been quite a while since I've updated on Punky's progress with FPIES and new foods. I felt that we weren't accomplishing a lot this summer, but when I look back, I can see that we made some good progress with her diet.
Here's her current list of tolerated foods:
Breastmilk- probably more for comfort than nutrition at this point, but I believe it still is giving her gut some protection and her immune system a boost.
Apples- sliced whole apples (including packaged apple slices from fast food restaurants), applesauce with no additives, Brothers-All-Natural freeze-dried apple slices
Bananas- whole bananas, Traders Joe's freeze-dried banana chips
Prunes- pureed baby food prunes with no additives
Corn- Arrowhead Mills puffed corn, Kix cereal, Gorilla Munch cereal
Millet- Arrowhead Mills puffed millet
Wheat- Whole Foods 365 shredded wheat cereal and crackers, Bob's Red Mill cooked wheat cereal, any whole wheat pasta with no additives, whole wheat flour, Arrowhead Mills puffed wheat
Quinoa- quinoa flakes, Ancient Grains quinoa pastas
The best part is, I now have a recipe from another FPIES blog for "Merry Muffins" which I slightly modified, using wheat, quinoa, bananas, sugar, canola oil, salt, baking powder, and baking soda. They taste great and Boo's been eating them too. It's been so liberating to be able to make a portable food Punky can eat when we're out and about.
We can expand even more on her current menu if we use every possible form of each food. For instance, if she can have corn, she'll be able to eat polenta. If she can have wheat, she should be able to eat couscous. That might help us delay some boredom, but it's not helpful nutrition-wise.
We have tried the elemental formulas and although her body tolerates what little she gets down, she just doesn't like them. I don't blame her. They are sweet and rich, but they taste "fake". Now that we have a few protein sources, the formulas aren't as important, but I'm still concerned about her calcium. We may have to supplement, which scares me because it was an unknown ingredient in a multivitamin that caused her last ER visit.
We're waiting for some teething pain to die down, and then it will be time for another food. I'm thinking about spinach, potatoes, broccoli, carrots, or pears. Perhaps I should do a little investigation on recommended nutrients for her age and see what would fill in the gaps the best.